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Racial Differences in the use of advance directives and attitudes toward hospice
This research seeks to determine how knowledge, social support, beliefs about spirituality, death and dying, advance care planning, and mistrust of the healthcare system influence attitudes toward hospice care and decisions to complete advance directives in a sample of community-dwelling African-American and Caucasian older adults.
Study Questionnaire: End of Life Care Questionnaire
Funders: Partnerships to Eliminate Disparities, Duke Comprehensive Cancer Center
Duke Mentored Clinical Research Scholars Program
Claude D. Pepper Older Americans Independence Center, Duke Center for the Study of Aging and Human Development
Principal Investigator: Dr. Kimberly S. Johnson
To learn more about this study, please contact:
Dr. Kimberly Johnson (919) 660-7506
Organizational Variability and Use of Hospice Care by Older African Americans
This research will describe variability in the structure, programs and policies of hospice organizations throughout North and South Carolina and identify organizational characteristics that facilitate the use of hospice care by older African Americans.
Funder: Beeson Career Development Award in Aging
Principal Investigator: Dr. Kimberly S. Johnson
To learn more about this study, please contact:
Dr. Kimberly Johnson (919) 660-7506
Racial Differences in Satisfaction with End of Life Care
Using after-death interviews with bereaved family members of African-American and Caucasian elders who die in the Duke Health System, this research seeks to determine how race impacts perceptions of the quality of the dying experience, including symptom management, communication, adherence to patient preferences, and overall satisfaction with care.
Funder: Claude D. Pepper Older Americans Independence Center, Duke Center for the Study of Aging and Human Development
Principal Investigators: Drs. Kimberly S. Johnson and Katja Elbert-Avila
To learn more about this study, please contact:
Dr. Kimberly Johnson (919) 660-7506
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